Caitlin Downing was not given the gift of many birthdays — she was only five years old when her life was claimed by the deadly brain tumor known as DIPG. In her short life, she played an important role in the quest to vanquish this terrible tumor,...
By Cindy Campbell Ty Louis Campbell was a beautiful baby, then a rambunctious toddler with curly blonde hair and an infectious smile. At two years and ten months old, Ty was the picture of health — no developmental delays, no medical issues — but he...
Sarah and Doug DeMarrais never expected to become champions for Chiari — a condition they'd never even heard of until their daughter was diagnosed. Here is their story.
By Stefano Kaslowski Mountain climbing is a hobby I inherited first from my Grandmother Cici and later from my mother — they both grew up in Torino near the Alps. I was born in Italy but live now in Istanbul, in Turkey, and I have been trekking and...
I'm a 45-year-old woman in Ecuador, South America — I live alone and enjoy my work as General Manager of a medium-size manufacturing company. I have a busy schedule and I travel extensively, both within and outside of Ecuador.
Kelly, a swimming champ and Olympic hopeful, resisted Chiari surgery until the pain became unbearable. This is her story. I am one of three girls in my family — all competitive swimmers. My parents wanted us to learn to swim after my uncle drowned....
Patti Ventura was shocked by her son's diagnosis, but she transformed her initial shock into determination to secure the best outcome for him. Since that time she's also raised thousands of dollars to help support Chiari research. Here is her story....
In May 2012, gliomatosis cerebri claimed the life of 21-year-old college sophomore Elizabeth Minter. Gliomatosis cerebri is a rare and inoperable brain tumor that strikes children and young adults, and the prognosis is usually very poor. Here are...
Connor was a 15-year-old high school student when he was diagnosed with a severe Chiari Malformation. Here is his story.
